Name
: Linda Massengale Hembree
E-mail
: minnastarr@yahoo.com
Adult:
49 years old
City,
State: Florence, Ky
Areas
of body affected: right hip, entire right leg and foot
Personal
History:
At
age 17, I was diagnosed with melorheostosis after suffering with leg
pain my entire life.
I was told I had growing pains and arthritis.
At 17
I was finally x-rayed. My parents
were told of the condition and that
little or nothing was known about
it. At age 21, a fairly famous
Cincinnati doctor wanted to
operate to remove the large calcium deposit on
the latter portion of my hip.
When in surgery he found that the deposit was
attached to my spine, at that
time he scrapped the femur to hopefully
relieve some of the vascular
pressure and closed me up. I was
told that 7
drill bits were broken in the
process of drilling burr holes in my femur.
In
the past 27 years since my only surgery the only treatment I have
received are anti-inflammatory
medications (Vioxx at present time) which I
feel do help some. My main source
is the right hip which is so blocked with
the calcium that I cannot tie my
own shoe or put on socks or stockings.
The way I have limped for so many
years has really affected my feet, knee
and ankles.
The pain is sometimes almost unbearable.
I was shocked
tonight when looking for an
orthopedic doctor hopefully with some new
knowledge, that I found this
website. My entire life I have
wished to
find someone else with this
strange disease, to compare notes and maybe
find help.
I would appreciate talking with someone like me, someone who
understands. Sincerely looking
for help. Thanks.
Comments/Suggestions:
I am grateful to find out there are other people
with this rare disease. Hopefully
someone somewhere will find help for us. I wish a physician would join the
discussion.