Name : Dawn Morgan
Email: dmorgan26347@hotmail.com; dmorgan26347@yahoo.com
Adult
City, State: Flemington, West Virginia
Areas of body affected: Both legs
Personal History:
I am at a loss as to what to do about this disease. I know very little about it. I want to know if there is any treatment. I live in Flemington, West Virginia. So far it has affected my lower extremities. It was found when I had an accident and broke my leg. The x-rays totally confused the orthopedic doctor so he sent them to, I think, the Mayo Clinic or some such place to find out what it was. He had no experience with it at all and had only seen this in a textbook in medical school. So at this point I know nothing, and I can't seem to find anything online about treatment for it. I have had severe pain in my legs for a long while but couldn't find out what it was. I also get a constricting feeling, and severe muscle cramps; I'm not sure how that affects this or even if it is part of it. My GP knows nothing of this either so we are at a loss. I also have another very rare condition called Relapsing Polychondritis; it is a cartilage disease which has affected several areas of my body.