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Personal Histories Shared by Melorheostosis Patients Disclaimer: The following information is shared by fellow melorheostosis patients about their own personal experience in dealing with this rare condition. It is in no way intended as a recommendation of any particular treatment, surgery, therapy or course of action, nor as a substitute for the expertise and judgment of your physician or other health care professional. |
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© Copyright 2001—2020 Melorheostosis Association. All rights reserved. |
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Personal Histories 2011 – 2020 |
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Personal Histories 2011 - 2020 To read Personal Histories from 2001 - 2004, click here |
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© Copyright 2001—2022 Melorheostosis Association. All rights reserved. |
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Name |
Date Submitted |
Child/ Adult |
Area of Body Affected |
Location |
|
2/7/20 |
Adult |
Second metatarsal in right foot |
Talihina, OK, USA |
|
|
2/2/20 |
Child |
Left thumb, fingers, wrist, arm, elbow and shoulder |
Northern Ky/Cincinnati, OH area |
|
|
Updated 10-10-19 |
Child |
Left Metatarsal and Tibia |
Havertown, PA |
|
|
5-9-19 |
Adult |
Right Index Finger, Right Thumb, Right forearm, humerus and shoulder |
Appleton, WI |
|
|
4-24-19 |
Adult |
Shin of right leg |
Guwahati, Assam, India |
|
|
1-23-19 |
Adult |
Left tibia |
Brunswick, Maine |
|
|
12-5-18 |
Adult |
Left hand and elbow |
Omagh, Co. Tyrone, N. Ireland |
|
|
11-11-18 |
Adult |
Feet |
Bennington, VT |
|
|
10-28-17 |
Adult |
Left Tibia |
New York, NY |
|
|
7-12-17 |
Adult |
Right leg |
Ireland |
|
|
6-29-17 |
Adult |
Right tibia |
Mayfield, KY |
|
|
5-14-17 |
Adult |
Toes on right foot |
Billings, MT |
|
|
3-1-17 |
Adult |
Hands and fingers |
Waiehu, Maui, Hawaii |
|
|
12-26-16 |
Adult |
Left leg, hip, knee, ankle |
London, England |
|
|
7-25-16 |
Child |
Left femur, right tibia |
Kingsville, TX |
|
|
3-23-16 |
Adult |
Right hand |
Burlington, Ontario, Canada |
|
|
Originally posted 8-5-14 |
Adult |
Right tibia, big toe and ankle |
Gladstone, Oregon |
|
|
2-24-16 |
Child |
Left foot |
Essex, England |
|
|
1-7-16 |
Adult |
Left hand, wrist, shoulder blade and under left arm |
St. Charles, Missouri |
|
|
12-22-15 |
Adult |
Right tibia on lower leg |
Nashville, TN |
|
|
12-9-15 |
Adult |
Right foot |
Auckland, New Zealand |
|
|
11-1-15 |
Adult |
Both condyles of left femur and tibia |
Helsinki, Finland |
|
|
10-1-15 |
Adult |
Left Hand; 5th & 3rd Metacarpal Right Hand; 5th & 3rd Metacarpal |
Phoenix, AZ |
|
|
9-14-15 Update: 12-29-15 |
Teenager |
5 & 7 right rib and vertebra |
Salem,Oregon |
|
|
6-8-15 |
Adult |
Both femurs; third metatarsal bone of III toe of left foot |
Sovramonte (Province of Belluno, Italy) |
|
|
5-27-15 |
Adult |
4th Metatarsal |
Rochdale, Manchester UK |
|
|
5/20/15 |
Adult |
Right leg |
Moses Lake WA |
|
|
1/4/15 |
Adult |
Right ankle |
Fort McMurray Alberta Canada |
|
|
10/2/14 Update to 8/28/09 |
Adult |
Left foot, middle toe |
Friendswood, TX |
|
|
8/21/14 Update to 9/17/11 |
Adult |
Right hand, fifth metacarpal |
Phoenix, AZ |
|
|
6/19/14 |
Adult |
Hands, forearms, legs |
Arlington, TX |
|
|
6/7/14 |
Adult |
Right side of body |
Indianapolis, IN |
|
|
4/11/14 |
Adult |
Right forearm |
Maryland, USA |
|
|
4/7/14 |
Adult |
Left ankle and leg |
Livingston, TX |
|
|
4/2/14 |
Adult |
Left knee and shin bone. Left foot and three toes. Right side of face and skull base. |
Benton, AK |
|
|
3/23/14 |
Adult |
Right hip down to my right foot |
Franklin, PA |
|
|
3/1/14 |
Adult |
Left heel bone |
Derby, UK |
|
|
1/23/14 |
Adult |
Left foot |
Jackson, MS |
|
|
12/30/13 |
Adult |
Third finger, left hand and small finger (see x-ray from May 2013) |
Merthyr Tydfil, South Wales, UK |
|
|
11/10/13 |
Adult |
Left hand: 3rd Metacarpal and 4 carpal bones: Lunate, Hamate, Capitate, and Triquetrum |
West of Phoenix, AZ |
|
|
11/10/13 |
Adult |
Right leg and foot |
Western Massachusetts |
|
|
11/7/13 |
Adult |
Right hand |
La Harpe, Illinois |
|
|
10/31/13 |
Adult |
Left index finger |
Barrie, ON Canada |
|
|
Parents: Alejandro and Angela Aluisa Michuy
|
10/25/13 |
Child |
Arm and right hand, left leg and foot |
Guaranda-Ecuador |
|
10/24/13 |
Adult |
Right thumb and pinky finger |
Portland, OR |
|
|
8/27/13 |
Adult |
Left Arm (both bones from elbow to wrist) |
Franklin, TN |
|
|
7/31/13 |
Adult |
Right knee |
Puerto Rico |
|
|
6/27/13 |
Adult |
Left 8th rib |
Clarksville, TN |
|
|
6/13/13 |
Adult |
Left fibula |
Dragasani-Valcea, Romania |
|
|
4/13/13 |
Adult |
Right ankle |
Albany, GA |
|
|
4/3/13 |
Adult |
Left ulna, left wrist, left fingers |
Fullerton, CA |
|
|
(Carolyn, mother) |
3-16-13 |
Child |
Right foot and leg |
Dartmouth NS, Canada |
|
11-27-12 |
Adult |
Left fibula |
Terrace, British Columbia, Canada |
|
|
9/24/12 |
Adult |
Right leg, foot and shoulder |
Cary, North Carolina |
|
|
8/16/12 |
Adult |
Left hand |
Shanghai, PR CHINA |
|
|
7/15/12 |
Adult |
Left foot and ankle |
Cambridge, England |
|
|
7/14/12 |
Adult |
Right foot |
Anchorage, Alaska |
|
|
(by parents: Ballard and Tanda) |
4/27/12 |
Child |
Left leg and hip |
Battle Creek, Iowa |
|
4/8/12 |
Adult |
Hand |
Holland |
|
|
3/27/12 |
Adult |
Hands, right side of body |
Australia |
|
|
3/21/12 |
Adult |
Left ankle |
Melbourne Victoria Australia |
|
|
3/7/12 |
Adult |
Left and right arms and hands |
Minnesota |
|
|
2/23/12 |
Adult |
Right clavicle |
Sioux Falls, SD |
|
|
2/18/2012 |
Adult |
Left foot and lower leg |
Maryland |
|
|
1/24/12 |
Adult |
Tibia and femur of left leg |
Port St Lucie, FL |
|
|
(Ronan and Niamh, parents |
1/22/12 |
Child |
Right foot |
Dublin, Ireland |
|
1/15/12 |
Adult |
Left ring finger /hand |
Crystal Lake, IL |
|
|
1/7/12 |
Adult |
Right Foot |
St Louis, MO |
|
|
12/8/11 |
Adult |
Left wrist, hand, fingers |
San Diego, CA |
|
|
12/2/11 |
Adult |
Right finger and pinkie finger on left hand |
Ashburn, VA |
|
|
11/01/11 |
Adult |
Right Upper leg, hip to knee |
Rochester, NY |
|
|
11/10/11 |
Adult |
Right hand, right ulna, right shoulder |
Lewiston, Maine |
|
|
11/3/11 |
Adult |
Right leg, knees; possibly hands |
Las Vegas, NV |
|
|
10/22/11 |
Adult |
Right ankle, top of foot to second and third toe |
Corpus Christi, TX |
|
|
10/20/11 |
Adult |
Right humerus, radius, ulna, wrist, index finger and thumb |
Hot Springs , AR |
|
|
10/10/11 |
Adult |
Left leg |
Davie, FL |
|
|
10/5/11 |
Adult |
Right fingers, hand, arm |
Manning, SC |
|
|
9/17/11 |
Adult |
Left arm and leg |
Finland |
|
|
8/23/11 |
Adult |
First and second rib on right side; First joint on index finger of right hand |
Gainesville, FL |
|
|
8/15/11 |
Adult |
Right foot |
Sumter, SC |
|
|
7/3/11 |
Adult |
Right leg |
Pune, Maharashtra, India |
|
|
5/17/11 |
Adult |
Left forearm |
Raleigh, NC |
|
|
5/12/11 |
Adult |
Left leg |
Argentina |
|
|
4/27/11 |
Adult |
Right hand (5th metacarpal) |
Chandler, AZ |
|
|
4/21/11 |
Adult |
Right side outer wrist including pinky and ring fingers |
New Bedford, MA |
|
|
4/5/11 |
Adult |
Right hand and wrist |
Edinburgh, Scotland |
|
|
3/1/11 |
Adult |
Femur |
Marysville, OH |
|
|
1/22/11 |
Adult |
Right tibia |
Bothell, WA |