Name of
patient Melanie Herrington
Email address:
bugahh4@gmail.com
Adult: 35 years old
Location: Sumter, S.C.
Area(s) of body affected: Right foot
Personal History:
I was diagnosed with this rare bone disease this past Friday. Back in January of this year, I noticed that my ankle was swollen and it hurt. It had pitting edema in it. I worked at a doctors office at that time and I asked a nurse what she may think it was; she told me to elevate it with cold compresses; keep an eye on it. Well, it never went down and the pain was constant-dull aching pain. So, being that I'm in my thirties, and smoked in the past not to mention my blood pressure was on the high side; very peculiar to me, I had the thought of it being a problem with my heart. Ran tests & those came back normal. Finally, I went to a Podiatrist. He diagnosed me with a fractured metatarsal bone; just told me to elevate & take OTC pain meds. & wanted to see me back in 2 weeks. 2 weeks passed & no change on the x-ray. He told me to keep doing what I was doing. See me in 2 weeks. Again, 2 weeks passed & no change. So, we did this for another month or so, he took me out of work for a week to keep off of it; return visit back; no change for the better on the x ray.
The
beginning of June, he finally sent me to another specialist in a bigger city.
That doctor, automatically put me in a boot & said he would see me back in 6
weeks. After 6 weeks of wearing the boot, the x-ray did not show anything
different. That's when he said that this was not a fracture, it's Melorheostosis
& Drapyseal Cortical Sclerosis. He advised me to get online to research this
rare bone disease because he really could not answer any questions that I had. I
am scared and curious as to what this has in store for me. I understand that it
could be worse; it's the pain, crippling, deformity, and the possibility of
other severe results from this disease that have me taken aback.
Comments:
Thanks for this web site. Hopefully, with today's modern technology, someone,
somewhere will find a diagnosis or treatment for this disease. We all just have
to keep the Faith!!