Name : Diane Jones
E-mail : dvjones@consolidated.net
Adult: 42 years old
Location: Friendswood, TX
Area(s) affected: Left foot
Personal History:
When I was a teenager in high school, I started noticing that I had pain
whenever I bent my middle toe backwards. It was not really bad, but I noticed
it. I even had a doctor say that I had broken my foot before, but did not know
it. In the summer of 1997, I finally had had enough of the crooked middle toe
and pain that I experienced when I stepped on something that made that toe bend
backwards. It had gotten much worse. I went to a doctor and had it x-rayed.
After waiting about an hour for the diagnosis, he came back in and told me that
they did not know what was wrong with me. It looked like I had broken the bone,
but it was healed. Upon leaving, the Radiologist came running out into the
parking lot to catch me...he had discovered what it was. After giving me the
diagnosis of melorheostosis, (I thought he was crazy) he sent me home with my
x-rays and instructions to go see my ortho who had corrected a broken tib/fib
several years earlier. Well, he confirmed the diagnosis, but would not operate
on it. Told me that when I could not walk any more, come back.
Ten doctors later, I found a wonderful ortho in Houston (Fondren Orthopedic
Group) who looked at it and said he would fix it after he did some research on
it. Lucky for me(?) I broke my ankle attached to that foot, and on my second
surgery to fix the ankle, he also did a hammer toe correction on that foot.
It has now been about a year and a half, and I am starting to experience more
problems with it. I will visit him again soon to see where we are...I am really
considering amputation of that toe...