Name : Johnny (Glenda, mother)
E-mail : latin_rivera@yahoo.com
Child: 12 years old
City, State: Philadelphia, PA
Areas affected: right foot
Personal History:
He was diagnosed in 2002 with melorheostosis. I had noticed his foot wasn't growing, it was 3 sizes smaller then his left foot. I told his doctor and she sent him to a podiatrist. That was where they told me about his disease. He got surgery done soon after that. That was the most painful surgery I think I have seen, it lasted 8 hours. He was in such pain that I would cry just seeing him suffer. He was in a cast for 3 months. After his scars had healed he was unable to walk well and he was in constant pain. He was in physical therapy for a year. He gave up the therapy because it was painful. Now he walks just a little straight but he feels pain all the time. His foot is not growing like the doctor said it would. He hates his foot because it's deformed. Sometimes I think I made the wrong decision by letting him have the surgery. He's only twelve now and he likes sports and he gets mad that he can't play sports.