Name :    Lyn Bell

E-mail :   lyn.bell@xtra.co.nz

Adult

Location:  Christchurch, New Zealand

Area(s) affected:  Knee and foot

Personal History:

I was diagnosed over 30 years ago when I was in my early 20's.  I have had 2 major operations and two key-hole surgeries.

When I was about 7, I fell out of a car and my knee took the force. The doctors say this was not the cause but I'm sure it started something - the calcifying of the bone.  After having a severe fall and injuring the top of my foot a few years ago it too calcified, so that is why I think there is possibly a link to injury in some instances.  Just a layman talking here.

I was born in Rhodesia and diagnosed there but it was only after coming to NZ that I had surgery.

Initial symptoms: pain and swelling of joint, locking in position; inability to bend or straighten leg properly.  I also have pain going up the leg.

When I first looked on the web, I only found one small paragraph about the condition.  Nice to know there are others out there.

   

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