Name : Lyn Bell
E-mail : lyn.bell@xtra.co.nz
Adult
Location: Christchurch, New Zealand
Area(s) affected: Knee and foot
Personal History:
I was diagnosed over 30 years ago when I was in my early 20's. I have had 2 major operations and two key-hole surgeries.
When I was about 7, I fell out of a car and my knee took the force. The doctors say this was not the cause but I'm sure it started something - the calcifying of the bone. After having a severe fall and injuring the top of my foot a few years ago it too calcified, so that is why I think there is possibly a link to injury in some instances. Just a layman talking here.
I was born in Rhodesia and diagnosed there but it was only after coming to NZ that I had surgery.
Initial symptoms: pain and swelling of joint, locking in position; inability to bend or straighten leg properly. I also have pain going up the leg.
When I first looked on the web, I only found one small paragraph about the condition. Nice to know there are others out there.