Name

Name : Sophie Primeau

Adult: 30 years old

Location: Montreal, Quebec

Area of body affected: Left hand, left arm

Personal History:

My name is Sophie, from Montreal, I speak French so I'm sorry if my English is not too good.

I was diagnosed when I was 5. I have the disease in my left hand (third and fourth finger) and left arm. I had surgery twice but it didn't do much. I played the piano for 12 years.

I have a question: are we sure that this disease is non-genetic?

Regards,

Sophie Primeau

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