Name : Steve

Email:  sniss@fiderion.com 

Adult

Areas of body affected: Right hip down to foot

Location:   Westport, CT

Personal History:

I have had melorheostosis all my life.  My disease is in my right hip down through my foot. I am currently having a problem with my right knee with calcification in the soft tissue of the knee.  If you know of specific literature that addresses that, etc., please let me know.  My doctors, who do a lot of research in this area are Joseph Lane, Russell Warren and Linda Russell, all at the Hospital for Special Surgery in New York.  

Comments and suggestions:  Thank you for putting this site up.  Previously, it was very difficult to find information on the disease.  I have also told my doctors about it.

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