Name : William (Bill) Beale
E-mail : W.e.beale@clear.net.nz
Adult: 63 years old
Location: Napier, Hawkes Bay, New Zealand
Area’s of body affected: Right Thigh (right femur), second toe left foot, and
third toe right foot.
Personal History:
Pain in lower back and legs when standing for long periods on a hard surface. In
2007, suffered pain in right thigh, thought that I must have knocked leg on some
object but no bruising and the pain was deep seated and would not go away. Went
to my doctor who ordered plain x-rays and bone scan from which he diagnosed
melorheostosis. Referred to Orthopaedic Specialist for confirmation and possible
treatment. Following further x-rays and visits I was left with the following
summary:
1. Confirmed that thigh and toes are in the same condition.
2. Confirmed that there is no cancer present
3. The specialist tried to blame the pain on other sources while agreeing that
it could be melorheostosis did not want to confirm or deny that it was
melorheostosis.
4. To be monitored by my Doctor with pain medication to reduce pain and assist
with sleep.
At the present time, November 2009, the pain is increasing and mobility is
slightly affected. I will be reviewing the situation with my doctor.
This website and the Melorheostosis Association need to be thanked for the
information that they have provided as it is so helpful for people like myself.